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Rare Disease Day 2014 and IIH UK – We Care!
Thursday 13th February, 2014

IIH UK, a charity who support people with a life changing rare condition called Idiopathic Intracranial Hypertension (defined by increased intracranial pressure around the brain) are collating thank you messages from IIH suffers for the people who care about them as part of this year’s Rare Disease Day.

The messages are to be displayed on the IIH UK website for anyone to read, here are some quotes:

“Family and Friends, well they are like my medication”

“We will get through this TOGETHER!”

“You manage to make me feel lucky every day”

To read all the messages visit iih.org.uk and see how thankful people are for someone to listen or just be there for them.

Rare Disease Day is on the 28th February and is an annual event to raise awareness amongst both the public and decision-makers about rare diseases and on how they affect people’s lives.


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